Parkinson’s Disease

Hello everyone as many will know I was officially diagnosed with Parkinson’s Disease last year although the first sign of a tremor started way back in 2015, being told at first I had a Functional Tremor although back in 2016 or 2017 I was prescribed some kind of Parkinson’s medication for a short trial, which didn’t work. I was also told that the tremor wouldn’t get worse which of course it did.

When I went back and asked why I was getting worse I was referred to the movement disorder clinic which turned out to be one other neurologist who agreed it was a Functional Tremor and shouldn’t get any worse. It did.

In 2021 Tim and I decided to pay to see a private neurologist the other visit were through the public health system, this guy wasn’t sure he thought possible Functional Tremor with some Parkinson’s overlay and referred to another neurologist this time in Westmead, Sydney a 2hr drive from where I live.

This neurologist thought a Dystonic Tremor with some kind of Parkinson’s thrown in and arranged for me to see another team of movement disorder people, this time there was something like 15 in total who checked me out discussed my case amongst themselves and decided it was more Parkinson’s then anything else.

I was also started on Parkinson’s medication the first lot didn’t do much so she tried another type which helped more but still not satisfied I was changed to another, then another which is the Madopar I am taking now which works pretty well. I still shake and it has spread to my feet and I still breakout in sweat and have balance problems when tired but overall I am doing better.

This will be the first post of a few about Parkinson’s Disease.