WEEK 7 OF 2023

An early start today up at 4.45am as I had to pee so just stayed up.

Sandy came over just to hang out for a while. She helped with a few small jobs around the house.

Damn it is a hot day.

Up at 5am found Tim already up, he was restless so got up at 4.30am. A much cooler day.

Went to brush my teeth only to find that my toothpaste was missing, along with Sam’s toothbrush, teenagers……….

Also while toasting my banana bread the baking paper caught fire, I turned the toaster oven off and it went out.

People from the DoH turned up to inspect the renovations, sometime today someone will be here to finish the ramp and paint the side guards.

Blain is back at school and Tasha is back helping me get ready for bed.

NATASHA’S BIRTHDAY SHE IS 36

The ramp looks completed but when I asked Tim about using it he said no and he will talk to me when he gets up. Also it is wet out and I don’t use the scooter in wet weather. Saw on the family chat that when Tim attempted to use the ramp there was some damaged caused to I don’t know what. The damage is to the bottom part of the door frame.

Tim say we need a board on the outside of the door.

Sam (Leo) didn’t take his meds before school and surprise surprise Jessica rang and asked if Tim could go and fetch him as he was having a bad day.

Been a much cooler day

Another wet morning so no taking the boy up the front by the look of it.

Tim has another doctors appointment as well as another physio appointment for his wrist.

Sandy called in to sort out some paperwork without Ed around. Temika has started at Cardiff High within half an hour she was texting her mum saying she didn’t like it there and wanted to leave.

I will shower myself this afternoon as I have a doctors appointment in Sydney tomorrow.

Had a decent enough sleep up at just after 5am. Not sure what time Tim wants to leave this morning.

The trip to an from Sydney went well, she (neurologist) increased my medication, I am now working my way up to 2 tablets 3 times a day.

Also she referred to my condition as Parkinson’s, so after years of being told I don’t have it, I am now told I do. The medication is for Parkinson’s.

She said I need to get my knee seen to I am still waiting to see a specialist about my knee.

A bloody hot day but we have air conditioning so we coped.

Friday at last and we are in for another hot day.

Took Sam up without a problem.

Sent an email to the neurologist asking for her to give my GP permission to give me copies of her correspondence with him.

Tim off to hand rehab he feels like he has a medical appointment nearly every day. He is also fed up with helping me get ready for bed he doesn’t do it every day but still it is getting to him. It also gets me down needing help.

Saturday here, had to wake Tim to take Tasha to her course and hopefully Jess will be able to pick her up this arvo. When I asked Tim if Jess was getting Tasha he reminded me that Jess & Sam have gone away for the weekend to see a friend who lives up near Casino.

Kathy arrived at 1pm to give me a shower and run the vacuum over the floor. While she was shaving my legs Sandy turned up for no reason other then to get away from her husband (Ed) who was getting on her nerves.

Another stinking hot day.

HOW I FEELABOUT STUFF

Well this Saturday and maybe future Saturdays I am posting how I feel about stuff, starting with the neurologist saying I have Parkinson’s. This happened on Thursday at our visit twice she referred to my condition as Parkinson’s, so I asked if I had it and she said yes, with a look that to me said “I thought you knew that”. I could hear my Mum who always thought it was Parkinson’s.

How do I feel about this well I am happy that this diagnoses may help me get help around the house but Parkinson’s isn’t a condition one wants to have. Also this is the third diagnoses I have had, first it was a Functional Tremor, then a Dystonic Tremor and now Parkinson’s. So will it change again.

I know I have gone down hill the last couple of years and expect to continue to go down hill, I just hope the medication acts like a brake an slow me down.

The road ahead is covered in fog and full of pot holes.

I often feel like I am a burden to my family and it will only get worse.

So really I am all over the place with how I am feeling.

WORD OF THE WEEK

Here we are at Thursday and that means it is word of the week day. This week’s word is “pantomine” a word with two meanings

Pantomine………Theatrical entertainment based on a fairy tale

OR: Gestures and facial expressions conveying meaning like in drama and dance

CREATURE DAY

Well is is again Tuesday,so it is creature day and today it is the Leichhardt’s Grasshopper, another creature I have never heard of.

This grasshopper is an incredibly rare Australian grasshopper long thought extinct until 1971 when it was rediscovered.

It lives in the top end of Australia where it feeds on a special selection of plants.

The species is named after Ludwig Leichhardt. It is known as alyurr in the Kundjeyhmi language.

AUSSIE FACTS

Ok everyone since I have no fact book, I will just give you some facts about Australia.

Australia is officially the Commonwealth of Australia, it is a sovereign country comprising the mainland, the island of Tasmania and numerous smaller islands.

With an area of 7,617,930 square kilometres, Australia is the largest country by area in Oceania and the world’s sixth-largest country.

There are 6 states and 2 main territories but in total there is 10 territories.

The capital isl Canberra located in the Australian Capital Territory ACT for short.

Our largest state is Western Australia and the smallest is Tasmania.

WEEK 6 OF 2023

What a bloody restless night I had I managed to stay in bed till 5.30am. A much cooler start to the day but won’t last top of 30 degrees again.

Workmen here at 8.45am to do the finishing touches to the ramp. Took them all day to do.

I turned the air con on as I can’t stand the heat.

Tim did a load of washing and hung it out to dry.

Blain has covid.

Had a reasonable nights sleep up at 5.30am a warm start to the day.

Spoke to Tasha about Blain he is sleeping a lot but feeling like he has the flu.

Sandra called in for a visit she said Centrelink has finally recognised that her and Ed have separated. This means her Centrelink payment will increase.

She has been applying for rentals every week between and 20 places with so far no luck.

Had a restless night from around 2am found it difficult to settle after going to the loo. Got up at 5.20am opened the house up, there is a nice breeze coming through.

Heat set in around 10.30 so I put the air con on.

Blain still sleeping a lot but is otherwise ok.

Wednesday again, I slept better last night, I have opened up the house but no breeze this morning.

Tim went to have a look at a car he saw advertised but didn’t like the look of it.

He also got a text telling him our electricity bill had not been paid. This pissed me off as I have been asking for the P O box to be checked since the end of January.

I got up at 5.30 after sleeping all night to find a mess on my table, which included the electricity bill which I will pay today, we have of course lost our pay on time discount which was $47.

Late yesterday arvo I had a phone call from the Occupational Therapist wanting to know if the ramp and bathroom had been done. She will be here next Monday to check out the work.

Managed to piss Tasha off by not getting that she was feeling stressed. It went right over my head.

I have to put myself to bed a task that is becoming much easier to do. Tim has medical appointments.

Friday here and after a good nights sleep I feel good, the house is opened and a slight breeze is coming though.

Had a visit from Kelli and Freya she needed some rental applications printer off. They have been given 14 days to move, like that is enough time. It is very hard to find a rental place she has already applied for over 20 places with no luck.

Also her baby is due in 20 days time, so she is very stressed.

Tim has his Dr’s appointment this afternoon about his elbow.

Saturday morning and I slept in till 5.50am, got up opened the house up made breakie and had Tasha message me to if her dad was driving her to her course, he is so had to wake him up.

Came back to the lounge-room to find the groceries being delivered.

Kathy and family arrived they had been out and decided to call in so Kathy could shower me.