Tag: Life

Week 42 of 2025

~ joannerambling ~ Leave a comment

 I slept well, woke at 5am got up took my meds and went back to bed for an hour, I had 8hrs & 45, ins of sleep and don’t remember waking at all during the night. 

It is 16C or 60F at 6.30am and we are in for another hot day but right now it is lovely with the front and back sliding doors open.

I went with Tim to Kmart he wants a pedestal fan; however, they didn’t have any, so we went to the Reject shop, but they also didn’t have any. 

By midday the temperature was 29C or 84F, Tim made me a chicken schnitzel bread roll for my lunch.

By 2pm it was 32C or 89F and my lower back/hip area is very painful with back spasms.

At around 4pm Tasha came down looking for food, Tim brought up how she is getting the careers allowance for me but is doing bugga all. Voices got raised and I felt stuck in the middle. Tasha pointed out that at this time I prefer having Sue’s company.

By 6pm the temperature had dropped to 24C or 75F and by bedtime it was a nice 21C

BGL: 7.0

Steps: 9,354 = 4.7klm’s or 2.8 miles

I slept well, woke at 5am feeling ok and with it although as I was taking my meds I ran out of water in my water bottle and they started to melt, what a horrible taste I spat them out went and found more water and tried again. 

It is a nice 14C or 5F here this morning not suppose to be as hot today.

I had 9hrs and 15 mins of sleep and didn’t wake at all during the night.

By 11am it was 21C or 69F my back was very sore and I have applied a heat patch.

At around 5pm I started to feel unwell, headache, stinging eyes and very tired. It is now 18C or 64F.

BGL: 7.1

Steps: 6,717 = 3.4klm’s

SANDRA’S BIRTHDAY SHE IS 48 TODAY

I had a shocking night between the dyskinesia and the spasms in my right hip I didn’t get much sleep, only had 5hrs& 35 mins. I woke at 4.50 and got up to pee, I took my meds and decided to go back to bed till Tim left, I then got up and had a shower.

I have decided to use the walker instead of the cane to see if that helps with the hip pain.

I managed to do a load of washing and hang it out to dry.

I went to lunch with my sisters at Warners at the Bay, it was great we laughed a lot, and Sandy liked her birthday present from me.

Then I had my physio appointment, and the therapist was pleased with my progress. My next appointment is on the 11 November at 13.30. I took the walker when I went out.

My hip started to give me a lot of pain around 5pm.

BGL: 6.9

Steps: 11,238 = 5.7klm’s or 3.5 miles’

I had a good night’s sleep, woke only when the alarm went off this morning so got around 9hrs & 31 mins of sleep.

Just after I got out of bed my phone started ringing, it was Jess she was at the front door and couldn’t get it as she couldn’t find her key and needed her work shirt.

It is a cool 14C at 6am and it’s not suppose to be as hot today, we will see.

Tasha rang Officeworks about my new laptop it should be in by 5pm.

I received a text letting me know my laptop is in this was at 2pm, Tasha said she will get it in the morning.

At 11am it was 24C and I turned the air con.

I have bad dyskinesia this afternoon which made my sweating worse, at 7pm it is 23C.

Steps: 13,799 = 7klm’s or 4.3 miles

DAD’S BIRTHDAY & MY NIECE ISSY’S AS WELL SHE IS TURNING 21

What a horrible night I had an interrupted night waking 3 times to pee. I went to bed at 8pm but at 10pm while trying to roll onto my left side I had a great deal of pain and was in distress, Tim came in and helped me get up and he rubbed deep heat into my hip and told me three times I need to see a doctor but I feel what’s the point it isn’t like anything can be done for the hip other then what I am already doing.

My watch says I had 5hrs & 31 mins of sleep which sounds about right to me. I felt part of the problem last night was that I was stiff, this morning the pain is still there but I am moving about and it’s not so bad.

It is 16C at 6am we are in for a hot day with the top being 31C, for all those not in my part of the world I will remind you we are still in spring.

We went shopping with Sue, then we went to the cemetery and left a birthday card for dad. When I got home, I was that exhausted that Tasha and Sue made me have a nap, after which I felt much better.

I have set the new laptop up and all is good.

The temperature at bedtime is 22C or 71F

Steps:10,812 = 5.5klm’s or 3.3 miles

I slept well got 8hrs and 38 mins sleep woke only once to pee, still have pain in my hip but applied Deep Heat and it’s not too bad.

I had no problem connecting the printer.

At 5.30an it was 23C or 73F, going to be another hot day.

By midday it was 28C or 82F but increased to 31C or 87F.

Around 7pm we had a small storm with strong winds, but it didn’t last long.

I went to bed at 7.30pm but found I had restless body and after an hour tossing and turning I got up and used the powerfit before going back to bed.

The temperature dropped to around 23C thankfully.

Steps: 11,526 = 5.9klm’s or 3.7 miles

After using the powerfit last night I settled down ok and had a good night’s sleep getting 7hrs and 39mins of sleep. 

When the alarm went off, I wasn’t sure I wanted to get up but had to pee, so I did and decided to have a shower and shave my legs.

It is a pleasant 18C as I write this at 6.30am.

Tim and I went down to the shops but since we went early some of stuff, I wanted from the bakery wasn’t available.

Spoke to Kathy each Saturday when we talk she has such interesting stuff about our family ancestors to tell me I am loving it.

I had a nap at midday; it has been a nice day warm but not hot.

Tim is working this afternoon/night.

Steps:9,322 = 4.7klm’s or 2.8 Miles

Week 35 of 2025

~ joannerambling ~ Leave a comment

I had another good night woke at 1.30am to pee and found Tim home from work already. I slept for 8hrs 57Mins and was awake for only 8mins.

Tim said he will be home around 8.30pm.

I have decided to go back to have 5 Madopar tablets each day.

It has been a warmish day.

Tim rang just after 5pm to let me know he has no idea when he will be home due to a traffic accident, no he hasn’t been in one but one has cause traffic to pile up.

BGL: 7.0

Steps:9,522=4.86lklms or 3miles

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I had a so-so night not one of my better nights, I didn’t want to get up this morning I felt that tired, but I did get up the temp is 12C. It turns out that I had only 5hrs 57mins sleep and was awake for 18mins.

It has been a warm day I have light long pants on and a tee shirt.

I have had trouble all day with my concentration and motivation, it is only 5pm and my eyes are stinging, going to be an early night for me.

BGL:6.0

Steps:9,649 =4.95klms or 3.4miles

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I slept better last night but still not great, I kept waking on and off all night I wasn’t awake for long, but that type of sleep isn’t the best. My watch says I only had 4hrs and 54mins of sleep, but it must have been more.

A coldish start to the day, I had my long pyjama pants on till 11am when I changed into long light weight pants.

I am struggling with dyskinesia this afternoon and into the night it got worse when I went to bed so after an hour and a half, I got up to write this down. It started around 5pm.

BGL: 6.0

Steps: 9,593

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I slept ok after I went back to bed at 10.30pm, still took me a bit to settle, my watch says I had only 6hrs and 31mins of sleep with 1hr and 26mins being deep sleep, it says I was awake for 20 minutes. 

It has been warm today but not as warm as yesterday, when I went to meet Sam this arvo it started to rain, thankfully not heavy.

Awake till 8pm, I am now off to bed, and I hope I have a better night. 

Temp at 5.30am 15C

Temp at 11am 22C

Temp at 3.20pm 19

BGL: 6.1

Steps: 5553=2.83klm’s or 1.7miles

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I slept much better last night but I have woken with a headache and feeling tired didn’t want to get up but had to pee and take my meds, so I am up, waiting for Tim to leave to have a shower. I only got 6hr’s and 10 mins sleep

I stripped the bed and will ask Sue to help me remake it

It is a cool start to the day; Sue and I went down to the shops and the post office. Sue remade the bed for me she wouldn’t let me help.

I was waiting for Sam this arvo when she rang to make sure I knew she wasn’t coming home via transport but was going to Bailey’s for a while, I did not know and was glad she rang me.

I am so tired today

Temp at 5.30am 12C

Temp at 1pm 19C

Temp at 7pm 16C

BGL:5.7

Steps:5,828= 2.95klm’s or 1.8 miles

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I slept much better last night had 9hrs &27mins of sleep and was awake for only 8mins.

I felt really cold when I went up with Sam.

Sandy called in to use the toilet, she said that her having Landon and Sklyar has been finalised which means she has them till they are 18.

Temp at 5.30am 10C

Temp at 1pm 20C

Temp at 7pm 17C

BGL:5.7

Steps:7,688= 3.92klm’s or 2.4 miles

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I slept ok last night had to get up to pee twice, I had 6hrs & 52mins of sleep and was awake for 28mins.

This morning it is pretty cold.

Tim, me and Sue went over to the Eastern Tiger for lunch, it was a nice outing.

I have done bugga all today, haven’t even vacuumed just no motivation to do anything.

It has warmed up by midday.

Temp at 5.30am 9C

Temp at 1pm 17C

Temp at 7pm 16C

BGL:4.8

Steps: 5,675=2.87klms or 1.7miles

Week 34 of 2025

~ joannerambling ~ Leave a comment

Sorry I forgot to post this yesterday

I had another good night had 9hr6mins sleep was awake for 7mins. 5C this morning, so bloody cold.

Tim had to leave for work at 2am he should be home by 8am.

I am so damn cold this morning, I am struggling to get warm.  I have two pairs of socks and slippers, a long sleeve singlet, a tee shirt and a cardician, fingerless gloves and a rug over my legs and yes, the heater is also on.

It warmed up by 11am and I managed to do a few things around the house.

BGL:5.8

Steps:6,045=3.05klm

I had really good night got 10hr19mins sleep was awake for 7mins. Not as cold this morning it is 7C.

I mopped the kitchen, laundry and bathroom floors, vacuumed out twice. Cleaned the kitchen when I first got up other than that I did nothing much.

BGL:5.5

Steps: 8,150=4.13klm’s

I slept well got 8hr54mins sleep was awake for 8mins.

Sam’s new driver is named Frank.

Coles was delivered around 8.15am but got message from Woolies at 7.30am saying there was logistical breakdown, and my order would be late, received another message at midday saying the order would be 240mins late.

Sue took me to physio, while there Jess rang to say my shopping had been delivered. So much for being hours late.

Physio went well, the physio’s name is Noah, and he was nice, I have of course been given some exercises to do each day I go back on the 2nd.

I set up the Cpap machine Tim bought for his use, it is actually an Apap machine, something I have never heard of, I didn’t have to set a pressure number. I hope it helps him. However, he does have issues with a blocked nose and that may make things difficult, but we will see.

BGL:5.5

Steps:10,388=5.28klm’s     

KIRSTY & VAUGHAN’S BIRTHDAY YES, THEY ARE TWINS.

I slept well even if my watch says I only had 6hr 56mins sleep was awake for 11mins. That doesn’t seem right I went to bed at 8.30pm work up at 5am.

Asked Tim how he slept he said he removed the Cpap mask during the night as his nose was blocked, and he couldn’t breathe.

Sue and I went to the podiatrist then home, it has rained on and off all day.

Sue sent me a video she shot around Charlestown of the police helicopter circling around and so many cops around the area. A man had been stabbed in a carpark and they were looking for the perpetrator. Part of what Sue was shown on the 6pm news

Of course, it was raining when I went to meet Sam this arvo.

BGL: 5.8

Steps: 9,516=4.83klm’s

I slept well even if my watch says I only had 6hr 48mins sleep and was awake for 19mins. That doesn’t seem right I went to bed at 7.30pm work up at 5am and I didn’t wake at all during the night to pee.

Sam let me know that I don’t have to meet her this arvo as she is going to Bailey’s for a bit.

Sue and I went shopping and saw Sandy and Denni which was great, Sandy told me I walk like our Nan did, and Sue said that on Tuesday when she looked at me, she thought I looked like Nan these comments I take as a compliment

BGL: 5.8

Steps: 7,555=3.83 Klm’s 

I slept well got 8hrs 26mins sleep and was awake for only 8mins.

It is another cold and wet day here temp this morning is 10C but after Sam goes to school, I have nothing to do and won’t be leaving the house.

This afternoon it is 14C and still raining.

BGL: 6.1

Steps: 6,300=3.23klm’s

I slept well got 10hrs 29mins sleep and was awake for only 9mins.

It is 10C this morning but warmed up a bit by 10 am and cooled down again by 5pm.

Tim is working this afternoon he is doing rail and won’t be home till around 2.30am tomorrow and he is working again tomorrow afternoon. He left at midday for work.

I received another parcel from Temu good, my error not Temu’s.

BGL:5.8

Steps: 7,652=3.90 klm’s or 2.4miles

I’m struggling but I am still here trying to do the best I can day after day

~ joannerambling ~ 14 Comments

Hi, everyone, I guess you would have noticed that during the last few weeks my posting hasn’t been up to scratch but that should be changing as I am going to start setting apart one day a week to write up posts which is what I have done for years but recently I stopped doing that and was writing the post the day I was posting it.

Now for a bit of honesty as I am sure most are aware I have Parkinson’s Disease well the last couple of weeks I have felt overwhelmed and in so much pain day after day, in the evenings I often feel so tired it is an effort to focus and stay awake but when I say I am going to bed early Tim will say something that makes me feel that I shouldn’t be and I know he doesn’t mean to make me feel bad in any way but I do.

My day starts at 5am and yeah, I know some would say why get up so early, but I like the quiet of the morning and I am most productive first thing by 10am I am starting to feel worn out and need to put my feet up and rest for a while. I am thankfully able to do most of the housework there was a while there before I was medicated that I could do bugga all.

During these really cold days I have been getting a lot of headaches and body aches and having moments when everything seems too much to deal with.

I have daily pain and stiffness, at times I have insomnia (but thankfully I am sleeping well at the moment), weakness, and stiffness when standing and walking for a bit till my legs come good.  I have to stand and get my balance, and the first few steps can look odd but once things start to work, I am ok. I have had times when sitting is uncomfortable due to my body aching or me starting to feel stiff all over.

I often struggle to get words out the path between my brain and mouth is often blocked and can make things difficult. I will often jumble up what I am trying to say, and it is frustrating to me.  Tim often comments that I take too long to answer him but I’m doing the best I can.

Swallowing can be an issue at times and yeah, I know I should take smaller bites, and I do try to do so but there are times I don’t remember to do so, there have been many times when food gets stuck, and I am chocking and coughing trying to dislodge it.

I have gained weight again and this is very depressing for me, telling me to eat less doesn’t help reminding me how much weight others in the family have lost doesn’t help, it just depresses me more.

My body can get very cold during winter and very hot during summer and having someone comment oh you’re cold or oh you’re hot with that shocked tone is also depressing for me. I can’t change how I am all I can do is try and cope the best I can.

Life at the moment is a roller coaster that is moving slow, my emotions are all over the place some days and I feel that the cold wet days are affecting my moods, making it more difficult to deal with the depression.

I cannot thank my sister Sue enough for giving me back a sense of a normal life, I get to go shopping regularly, I have someone to take me to appointments and someone who I can laugh with, and we do laugh a lot when together.

I am blessed with a loving and supportive family and none of them say or do anything to intentionally upset me but there are times when I feel some do not want to take the time to read and understand how Parkinson’s having is affecting me.

Some may think I should take a break from blogging, but it is a big part of what keeps me going day after day, like having to ring Sam 4 or 5 times in the morning to make sure she is up and getting ready for school.

There are days when everything feels like such a struggle and way too much effort is needed to do anything and everything.

Anyway I am hoping that I will continue to improve and I will make sure each Sunday I will take the time to write up posts  for the following week.

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Week 32 of 2025

~ joannerambling ~ Leave a comment

Slept well didn’t wake at all during the night got 9hrs and 18mins sleep and the watch says I was awake for 21 minutes.

It is still wet outside and the temp is 13C

Tim and Jess went to Bunnings as Tim is going to move one of her security cameras but not today due to the wet weather. It stopped raining long enough for Tim to work on the security camera.

Jess also helped her dad do his tax return and it looks like he will get a small refund.

I have done bugga all in the way of movement done some stuff on the computer and vacuumed three times but that’s about all.

BGL: 7.1

Steps 3,445=1.7Klm’s

Slept well didn’t wake at all during the night got 7hrs and 52mins sleep and the watch says I was awake for 8 Sue drove Sam to Tafe and went down and bought me postage stamps.

It’s a nice day, we have had some rain but not all day.

I have felt sad this afternoon due to how much I can feel my body and jaw moving.

BGL:6.1

Steps: 6,682=3.40klm’s

LILLIANA BIRTHDAY SHE IS 8 TODAY

Slept well didn’t wake at all during the night got 8hrs and 54mins sleep and the watch says I didn’t wake at all.

Although I woke up with bugga all energy I brushed my teeth and washed my face went into the bedroom to dress and just sat on the bed I didn’t feel like doing anything.

I have improved by 9am but still don’t have a lot of energy.

By 1pm it was quite warm, and I needed to change my clothes as I was hot. I also went through the clothes in my gift box and labelled them.

I went to wear thongs to walk up and meet Sam, but I stumbled a few times and ended up taking the scooter, no more wearing thongs for me.

BGL:6.1

Steps: 5,669=2.85Klm

Slept well got 7hrs and 17mins sleep and was awake for 28 mins. I did wake with a headache.

It has been a warm day, I have had a productive morning, ran the dishwasher and unpacked it, did a load of washing and hung it up to dry.

Kathy rang me she is off work sick and feels shocking, she said she will ring Tim tomorrow night.

I walked up to meet Sam this arvo without any issue.

It has been a lovely day.

BGL:5.6

Steps: 7,404=3.77klm’s

Slept well got 9hrs and 15mins sleep and was awake for 58 mins. I did wake with a headache.

It was fine when I got up but had started to rain by 6am.

It was raining heavy when I went up the top to wait with Sam.

I am going shopping with Sue, she thought she would drive up Hillsborough Rd, that wasn’t a good idea after 30mins we weren’t even halfway up the road, so Sue turned around and we drove up Bayview which was better but still slow. Took us an hour to get out of Warners Bay it should had taken no more than 10 minutes.

It has been a cold day and this arvo I ache all over and have zero energy and concentration.

I am having an early night

BGL:5.9

Steps: 6,637=3.38klm’s

LANDON’S BIRTHDAY HE IS 13 TODAY also

TOM’S BIRTHDAY HE IS 30 TODAY

Slept well got 9hrs and 51mins sleep and was awake for 23 mins.

It has been a cold but dry day Tim will be home late.

Tasha brought me a finger bun which she dropped off this afternoon. I will eat it tomorrow.

Another early night for me.

BGL:6.1

Steps: 6,755=3.44klm’s

Had a not so good night well it was ok till 2am when I got up to pee and had a lot of lower back pain, this kept waking me up after 2am and I ended up getting up at 4.20amm as the pain was so bad. I placed a heat pack on my back and that has helped a lot.

I had in fact 8hrs and 29mins sleep and I was awake for 59mins.

It has been raining since I got up.

Tim got up at 9am and he is in a mood, complain about a sore throat and other stuff.

Tim and I went shopping at Big W, I bought a new top and new socks.

Had a visit from Blain and Ta’lia it was nice to see them, they are moving into a shared house with 3 other people, I hope it all works out for them.

It has rained on and off all day.

BGL:5.9

Steps: 6,946=3.60klm’s

Week 31 of 2025

~ joannerambling ~ Leave a comment

Had another good night slept for 8hrs and 55min, I didn’t awake at all, I had 2hrs and 54mins of deep sleep.

This morning it’s not as cold with a temp of 11C.

It warmed up to 17C, I have had zero motivation today as well as a headache I did manage to do a load of washing and hang it up to dry, I also vacuumed.

Jess now has a few security cameras focused on her car and front door.

BGL: 5.6

Steps: 4,6092=2.38Klm’s

Had another good night slept for 8hrs and 55min, I didn’t awake at all, I had 2hrs and 18mins of deep sleep and 18mins awake during the night, which would have been when I got up to pee.

I have had a good day managed to do bugga all, other then blogging and folding clothes as well as vacuuming.

When Sue arrived to get Sam, I gave her the chair yoga sheets I bought her so she can give that a try, I like doing those exercises. I also gave her the slides/scuffs (shoes) I bought her. She tried them on when she got home and said they fit, and she liked them.

Around 5pm I started to feel drained, and I am finding it difficult to concentrate.

BGL:5.5

Steps: 8,302=4.23klm’s

Had another good night slept for 8hrs and 23min, I didn’t awake at all, I had 2hrs and 18mins of deep sleep and 24mins awake during the night, which would have been when I got up to pee.

I have turned the bathroom heater on as I will have a shower after Tim leaves for work.

Tim came home between his morning and afternoon runs.

It has been an ok day, I have been busy day this morning changed the sheets, and cleaned the kitchen, running the dishwasher and unpacking it when done and of course I vacuumed twice and fed the birds twice.

Sam told me that at school her and her friend are learning about what is involved with the types of jobs/careers they want to have when they leave school. Sam is interested in becoming a social worker or a counsellor.

BGL:5.8

Steps: 9,547=4.85Klm’s

Had another good night slept for 8hrs and 32min, I didn’t awake at all, I had 2hrs and 29mins of deep sleep and I didn’t wake at all during the night.

I also woke to the sound of rain, and it is supposed to rain all day, also it is a cold 9C this morning.

Last night I noticed one of the security lights in the driveway was out, so I reported it online and this afternoon someone came to check it out.

Sue asked me if I would like to go to Coles with her tomorrow she wants to get a few things. I said I would love to do that.

It has rained on and off all day

BGL: 6.1

Steps:7,094=3.55Klm’s

Had another good night slept for 9hrs and 24min, I had 2hrs and 29mins of deep sleep and was awake for only 13 mins.

It’s raining this morning and it’s cold with the temp being 10C.

Sue and I went down to Coles to get a few things and when she brought me home, she left the keys in the car, and I must have pressed down on the lock when I was getting out and her keys ended up locked in the car, I felt awful. We ended up ringing a locksmith to get into the car and Jess paid the man as I didn’t know how to do a payment with PayID, Jess showed me so now I know.

When I went to meet Sam this afternoon it was so damn cold, when I got back inside the house, I felt awful, headache and congested.

BGL:6.1

Steps:7,910=4.03Klm’s

Slept well didn’t wake at all during the night got 9hrs and 29min, I had 2hrs and 56mins of deep sleep. It’s raining again and at 10C I need the heater on for a bit. I have a headache due to the cold.

Sam told me this morning she is going to Bailey’s after school, so I don’t have to go up and meet her.

I sent Tasha a text at 11.50am but she didn’t reply so at 12.50 and told her to forget it she has replied to that either.

I had two soft boiled eggs for lunch.

At 3pm Sam rang she wanted to make sure I remembered she was going to Bailey’s after school and that I wasn’t waiting for her in the rain. I had remembered and I wasn’t waiting in the rain.  

Jess came over to drop off her work shirts for me to wash and we had a nice chat.

This evening when Tim went to use the portable gas cooker, he uses it would start so he rang Jess and asked to borrow hers, but he realised what he was doing wrong, but she still came over and was here for an hour and a half just talking to her dad.

I am having an early night as I just feel done in.

Steps: 7,708=3.88km’s

Slept well didn’t wake at all during the night got a good 10hrs sleep and didn’t wake at all, although the watch says I was awake for 33 minutes.

It is raining again and at 12C I need the heater on.

It has rained all day, this arvo there was thunder, no lightning just thunder and rain.

I turned the heater to face the clothes hoists to help dry the clothes while keeping the room warm.

I have to make an effort to lose weight.

Steps:7,120=3.59Klm’s

BGL: 6.3

Week 30 of 2025

~ joannerambling ~ Leave a comment

I had a good night slept straight threw, didn’t wake at all had 8hrs and 52mins sleep. 

We have decided we need a new vacuum cleaner as the one we have isn’t picking up stuff very well, it does a half ass job, so we may go out to Target and get a new one today. We also bought a new toasted sandwich maker.

This morning was cold, but the day warmed up, Tim even changed into shorts and a tee shirt.

We picked up the photos that were printed and Tim has hung them on the wall, but he wants one of them in a larger size which I have ordered for him.

This afternoon I had a few scotches and cokes, didn’t get drunk just a little tipsy.

BGL: 5.6

Steps: 9,666=4.90Klm’s

First day of term 3.

I had a good night slept straight threw again, had 8hrs and 2mins sleep, although the watch says I was awake for 20mins.

Sue and I drove Sam to Tafe then I went to have my mamogram I was an hour early, but I was taken in quick.

After that we called in at a local cake shop to get a cream bun each, then we stopped at the post office so Sue could go in and get me stamps, the cost of stamps has gone up again it is now $1.70 to send a local letter.

The we stopped at the plaza so I could drop a script into the chemist.

Then home, I haven’t felt like doing much for the rest of the day.

BGL:5.7

Steps:7.727=3.92Klm’s

Another good night slept for 9hrs and 27min, didn’t wake at all, this morning it is 12C but doesn’t feel that bad at the moment.

Tim has work today which is good and Sam has school, and I have nothing.

I cleaned behind the toaster oven and behind the toilet, well as vacuuming and with Sue’s help I changed the cover on Tim’s chair. I tried the new toasted sandwich maker it is ok but for standard sandwiches I prefer the other one, the new one will be good when I have toasted spaghetti sandwiches.

I rode the scooter up to meet Sam just didn’t feel like walking.

BGL:5.5

Steps:6,101=3.08Klm’s

Another good night slept for 8hrs and 27min, didn’t wake at all, this morning it is 12C.

Tim has work again today, I am waiting for him to leave before I have a shower. I turned the bathroom heater on when I got up so the room will be warm when I go in for the shower.

Tim turned the heater off, so the bathroom was cold I was somewhat annoyed.

Had the pharmacist come to go over my medications, all is good he will follow up in a couple of months’ time.

Jessica discovered someone had written Fuck on her car in chalk, Tasha caught it on her security camera it was one of the neighbour’s kids.

BGL:5.4

Steps:12,083=6.13Klm’s

Another good night slept for 9hrs and 10min, didn’t wake at all, this morning it is 7C.

Tim has work again today, but not till this arvo.

Tim and Jess went to bunnings to get extra security cameras for her house.

I went shopping with Sue which was great doing this makes me feel like I am living a normal life, like I did before Covid. I can never thank Sue enough for making me feel somewhat normal again.

The afternoon was warm.

BGL: 5.5

Steps: 8,081=4.11Klm’s

Another good night slept for 9hrs and 17min, didn’t wake at all, this morning it is 1C.

Tim will be up and off to work in an hour or so.

By 10am it had started to warm up and by midday it was 17C.

I emptied the recycle boxes into the recycle bin outside and managed to fill the bird bath with water as well as toss out bread and bird seed for them.

I walked up to meet Sam and Jess came with me she wanted to show me a couple of clips on her phone, funny stuff it also, made me laugh. So, we were both there when Sam arrived.

BGL:5.2

Steps:8,157=4.14Klm’s

Had another good night slept for 8hrs and 59min, I was awake for only 12mis, this morning it’s not as cold with a temp of 10C

Tim will be up at 6.30am as he is working all day. Jess is also working today.

It started out wet but by 10am it had fine up, a parcel arrived from Temu today more gifts and a few things for me as well.

Sam and Bailey came over to make food, Bailey gave me a cupcake which was nice.

Tim home at 6.15pm.

BGL:5.3

Steps:9,192=4.66Klm’s

Week 29 of 2025

~ joannerambling ~ Leave a comment

I slept well had a good 9hrs &24 Mins and I didn’t wake at all I even had 2hrs of deep sleep.

At around 9.am I started to feel really cold and super tired but after a couple of hours I was feeling better.

Tim cooked crumbed steak and veggies for lunch, it was nice although I did have trouble swallowing twice and Tim told me to stop putting so much food in my mouth.

Tim spent most of the day outside working on the back yard and his veggie garden.

BGL:6.1

Steps:5,521=2.79Klm’s

I slept well had a good 9hrs & 16 Mins and I didn’t wake at all I even had 2hrs 54mins of deep sleep.

Tim and I went to see our GP this morning both of us had no issues with our blood test results.

I had an appointment with my neurologist it was a video appointment she has made no changes to my medication and since the dyskinesia is often and doesn’t last generally for too long, she is not worried about it but would like me to keep a record of when it happens. My next appointment is in January that one will be a face-to-face appointment.

BGL: 6.5

Steps: 3,365=1.69Klm’s

I slept all night again, getting 9hrs and 11mins of sleep.

It is a cold day been raining on and off all day.

Blain came to see me he said he and his girlfriend have moved into a hotel in Adamstown as they don’t feel like they can live with Tasha anymore, why that is I don’t know.

I went and checked the letter box I had three letters, there was one for Jess and one for Tasha.

Tim cooked chicken kiev and chips for tea and it was nice, I liked it and so did Tim.

BGL: 5.4

Steps: 6,893=3.48Klm’s

I slept all night again, getting 9hrs and 19mins of sleep and was awake for 14mins.

It is currently 4C here so pretty cold, should reach a top of 16C.

Tim is working he will leave here around 10.15am and should be home by 6.30pm.

The day did warm up somewhat and I managed to get off my ass and vacuum and get the clothes off the line and folded and put away.

Sue sent me a text about going to see our sister Jeannie tomorrow, I said that will be fine with me, it is Jeannie’s birthday on Saturday.

BGL: 5.1

Steps: 5,522

I slept all night again, getting 10hrs and 39mins of sleep and was awake for 36mins.

It is currently 2C here so pretty cold, should reach a top of 17C.

Noticed Jess car gone this morning found a text from her she is working.

Saw on FB this morning that my niece Temika is having surgery today, what 6,379the hell no one told me she was having surgery. Turns out Sue didn’t know either and Jeannie only found out a week ago when she watched Sandy’s kids.

Sue and I went to see Jeannie and give her birthday presents from me and Sue it was nice seeing her.

It seems Temika was born with something wrong with her arm and need surgery to repair it, it is a big opp they have to break the arm to rest it right, she will have pins and plates in it. I hope it all goes well.

BGL: 5.4

Steps: 6,379= 3.27klm’s

I slept all night again, getting 8hrs and 39mins of sleep and didn’t wake at all.

It’s not as cold this morning with the temp being 7C.

Jess asked if she sent over the stuff would I do a casserole for her lunch. I said yes and have already put it on to cook, I do it in the slow cooker.

Jess & Sam came down and had lunch here that was nice.

This afternoon I started getting stabbing pains in the top of my head which has turned into a headache across my forehead and behind my eyes.

BGL: 5.4

Steps:5,979=3.05Klm’s

JEANNIE’S BIRTHDAY SHE IS 57 TODAY

I slept all night again, getting 8hrs and 56mins of sleep and didn’t wake at all.

It’s a cold morning again temp is 8C.

Tim is working this afternoon and bight he thinks he will be home around 1am.

Sam came over around 7.45pm to use my toilet and then she stayed awhile, and we had a chat about her day out in Sydney with Bailey. She said she had a good day, no issues with transport or anything else.

After Sam left, I went to bed.

BGL 5.4

Steps: 5,423 = 2.76 Klm’s

Week 28 of 2025

~ joannerambling ~ Leave a comment

My watch says I slept for only5 hrs and 12mins and I was awake for 31 mins. It was after midnight before I settled, when my alarm went off at 5am I got up went to the toilet and took my meds then went back to bed for another 30mins. When I got up, I had a shower and dressed.

Tim and I went over to Kmart and bought a garment steamer to do his shirts.

It has turned out a warm day.

I have been struggling to find motivation to do stuff today, I was fine first thing this morning but after we got home from shopping my motivation had drained.

BHL6.6

Steps: 8,088= 4.12Klm’s

My watch says I slept for only 9 hrs and 12mins and I didn’t wake at all. I also woke up with a headache. Jessica bought me a ham & cheese pocket and a hash brown for breakfast.

Tim took the car to have the light bar fitted to the car, he left at 7.30am and it was around 1.30pm when he got home but he said he is happy with it.

He has packed his stuff to go away for a few days with work, he is going to Sydney tomorrow and will be home Thursday night or Friday he isn’t sure just yet.

I am so over the dyskinesia I have had this problem the last few days and it is exhausting and frustrating and yes, it is depressing me.

Steps: 11,219=5.70Klm’s

I will add here that I don’t walk that far most of the so-called steps are to do with movement and some days my body moves a lot. This is something Tim said last night about my high steps and not walking I reminded him about how much my body moves some days, and he said yeah, he knows.

I had a good night my watch says I slept for only 9 hrs and 21mins and I didn’t wake at all.

Tim has left this morning he is working in Sydney for a few days and will be home either late Thursday night or Friday morning.

I rang Centrelink and the man I spoke to was very helpful and after some time he managed to arrange for a letter to be sent to me stating I get no payment from Centrelink.

Tim video called me tonight he is a room on his own which makes him happy, he said the room was very small, but they are at Ibis.

Steps: 7,872=4.00

Another good night my watch says I slept for only 9 hrs, and I was awake for 31mins.

I did a load of washing and hung it out this left me hot and exhausted.

While I was using the powerfit and doing my exercises I was surprised to see Sue turn up. Turned out the morning voice message I sent to Sue was staticky and not right, so she came to check on me.

It is a nice warm winter day.

Tim rang at 7.10pm just to check in and see how I was he said he should be home sometime tomorrow night. Although I suspect it will be the early hours of Friday morning.

Steps: 6,869=3.49Klm’s

BGL: 5.4

Another good night my watch says I slept for only 7 hrs and 13 mins and I was awake for 13 mins.

It is a cold and windy day. I went shopping with Sue and it felt good to get out of the house.

Sue’s birthday present for Jeannie arrived and it looks good. I have done my present to for her already to post, I see how much it will cost to post and if it’s too much I may get Sue to give it to her when she sees Jeannie, Sue’s present is too fragile to post.

BGL 6.5

StepsL8,553=4.33Klm’s

I slept well, 9hrs & 21mins and I was awake for 32 minutes. Tim is home he went to bed a I was getting up, as he is off today, I will let him sleep till whenever he gets up.

Tim got up at 9.30am, he is working out the back.

Sue took me to have thee Xray and Ultrasound done.

It is a warm day

Kathy came over around 3.45pm she was here for just over an hour, she brought back all dad’s genealogy stuff. She uploaded it all to ancestry dot com.

I went to bed at 8pm had about 40 Mins sleep then woke up and haven’t been able to settle so I got up and used the powerfit for 30Mins, updated this and now I am going back to bed. It is now 11.45pm

BGL:6.3

Steps: 9,724=4.97 Klm’s

What a night, after returning to bed I couldn’t settle I was tired but nope wasn’t happening, I had to get up and find the Vicks to rum under my nose as I felt like I was all blocked up and couldn’t breathe right. Then I found myself needing to pee often live every 45 mins. So, when the alarm went at first, I didn’t want to get up, but I needed to pee again and decided to stay up. I can close my eyes later if I need too. I have had only 3hrs & 52mins of sleep.

Tim and I went to the shops so I could get a new vapor stick thing that you run under your nose to clear it making it easier to breathe.

Tim thought he broke the new laminator as it was jammed, he was going to toss it, but I said just remove the jam he had to take it apart to do that but after he did it worked just fine, he should have done that with the last one instead of having a hissy fit and tossing it in the bin.

As I was getting up to go to bed, I had a moment when I found it hard to stand upright, thankfully Sam was nearby and helped by holding me while I straightened up without falling over after I was upright, I was fine.

BGL: 6.1

Steps: 8,290=4.25Klm’s or 2.64miles.

Week 27 of 2025

~ joannerambling ~ Leave a comment

My watch says I slept for only 4hrs and 17mins and I was awake for 14 mins.

Tim and I went shopping, Tim cashed in the bottles, I bought a new pair of trackies and a new Tee shirt. I also went to Woolies to get a few things. By the time I got home I was exhausted.

It has been warm enough outside for Tim to do some work out the back.

I spent a couple of hours reading and commenting on blogs and cropping some photos.

BGL:5.5

Steps:7,953 = 4.4klms

My watch says I slept for 7hrs and 21mins and I was awake for 9 mins, much better than the night before.

When I got up to pee at 4.15 the bathroom was so damn cold, I turned the heater on and left it on when I went back to bed so that it could warm the room a bit before I went in for my morning wash.

Tim rang me to let me know he wouldn’t be home till this arvo, so I cooked my own lunch chicken schnitzel and chips.

Steps: 10,938=5.80 Klms

It is a wet morning, and I woke with a headache.

My watch says I slept for 7hrs and 34mins and I was awake for 34 mins. My watch analyses changes in physical activity to estimate sleep time and status. It is designed to give one a pretty good idea of how they are sleeping.

It was raining lightly when I went with Sam to wait for her transport this morning.

While I was getting my pizza out of the oven for my lunch my left knee gave way and if I hadn’t been leaning against the bench I would have ended up on the floor. So, I had Jess go and meet Sam this arvo.

Blain came down to check on me and was here for about half an hour just chatting.

Sue has dropped Archie off at Tasha’s while she goes to Qld to visit Kirsty she will be gone 6 days.

It has been a really cold day.

9,310=4.55

It is a wet morning, and I am waiting for Tim to leave for work so I can have a shower.

My watch says I slept for 9hrs and 52mins and I was awake for 30 mins.

Sue caught her flight to Qld to spend some time with Kirsty’s family.

Tasha said Archie is hiding under Blain’s bed, he hasn’t eaten or drank anything.

This afternoon Blain came down and told me they had to remove the mattress and slates on Blain’s bed in order to get Archie out, he said he had to put a towel over Archie’s heard in order to get him out from under the bed. Tasha put Archie into his carry case to settle down.

I am very restless this arvo and cannot stay still.

BGL:5.8

Steps:12,737=6.49Klm

It is a wet morning, and I am waiting for Tim to leave for work so I can have a shower.

I had the worse night I have had in ages; my watch says I slept for only 4hrs and 9mins and I was awake for 33 mins.

I am so cold this morning from around 10am and have a headache. I tried to have a rest during the day but didn’t happen, so I expect to be in bed early tonight.

Thankfully the day warmed up some and I was able to get motivated to answer some letters I have here.

Tim found out we need to go to Centrelink which for those who don’t know is our social security anyway I need a letter from them stating I do not get a payment to hand in to housing so they can stop charging us rent on money we don’t have. I found a phone number and Tim said he will ring them tomorrow.

BGL 5.6

Steps: 7,966=4.06Klm’s

I had a much better night my watch says I slept for only 9hrs and 15mins and I was awake for 39 mins.

Today is the last day of term 2 for school, some schools finished last week like the school Tim does but most in NSW finish up today.

I rang Centrelink using the cordless house phone I was waiting for around 1.5hrs then after I explained what I wanted I was asked to hold while things were checked and after another 25 mins the phone died. I decided I will ring back on Monday as I had enough.

Steps:8,886=4.48 Klm’s

My watch says I slept for only 9hrs and 22mins and I didn’t wake at all during the night.

I have been really cold this morning and have a headache I think due to the cold.

Tim left for work around 5.30am, he said he should be home mid-afternoon.

Tim got home around 2pm, the first thing he did was changed his clothes and went out the back to work on the yard.

I am having a rough arvo and night, unable to settle I got up and used the powerfit

BGL:5.6

Steps: 9,603= 4.85Klm’s