PArkinston’s Disease Pt 9

Ok everyone I have spoken about the more major symptoms of Parkinson’s Disease but there is what can seem like a endless list of minor symptoms. Listed here are just a few and I will explain more over the next couple of weeks.

These include such things as tiredness which I suffer from with many days needing to close my eyes for a 20-30 minute nap, depression which I also suffer from and have done for years but there are times when things start to get to me and causes me to feel like crying. Another symptom is dribbling or drooling which I have a problem with some nights.

Thankfully I don’t have constipation or mental confusion, although my memory can be shit at times I write a lot of small notes for myself which may or may-not be connected to Parkinson’s.

It can be difficult to know whether something is or isn’t connected to the Parkinson’s.

Let’s look first tiredness, most people do not know what real tiredness is, it is however, common with Parkinson’s and it is difficult to understand and describe if you don’t have the disease.

Patients with Parkinson’s often feel that doing things take a great effort compared to a normal person many tasks exhaust the suffer and even having a rest doesn’t relieve the feeling of exhaustion, as you would expect it to.

The tiredness isn’t just a physical thing but also a mental thing we feel lethargic and have no real interest in doing stuff but doing simple exercises and if possible going for a walk will help in the long run. I don’t go for a walk but I do do some simple exercises during the day, to keep body flexible.

Next week we will talk about sleep issues.

5 thoughts on “PArkinston’s Disease Pt 9

  1. Dearest Jo-Anne,

    Indeed there are lots of factors that come into view.

    You are so far dealing well with them and let’s hope you can stretch it out over quite a period to go on.

    I myself am also feeling exhausted all the time and it is so difficult to get any good rest or for sleeping well. Almost every night I wake up and can’t sleep for several hours…

    Yesterday I was lucky for getting a three–hour nap! Later than usual but it felt so good afterwards.

    Did walk today 3.3 km in 27°C weather, with my walker. Pieter was gone by car and I could not unfold the wheelchair… no strength doing that. So I took the walker and that was not a fun thing, the wheels did vibrate too much on the pavement of the road. Pieter makes fun of me for not being able to unfold or fold the wheelchair but I simply don’t have the power. Will power yes but no muscle power…

    I am not lazy but weak and that is different!

    You no doubt know those feelings as others judge us wrongly. Not that I have Parkinson’s but I only can identify with so many symptoms.

    Oh, and I wish those night sweats would end… not severe anymore but enough to make me change!

    Big hugs,

    Mariette

    1. Yes I hope that my conditionprogress slowly but at times it doesn’t s4em that it is. Trouble sleeping is horrible and hard to deal with. Walking is so exhausting , wel I find it is this morning I walked to TAsha’s and back not very far but I still felta tad worn out.

      Wanting and thinking we can do something can be so different from being able to do it, like folding and unfolding a wheelchair that is something I have trouble with myself.

      You don’t have to have Parkinston’s to experience some of the sympytoms

  2. My heart goes out to you. I appreciate your willingness to share your journey and experiences with us in such an honest way.

    I was diagnosed with Parkinson’s in 1996; however, several years ago, a new neurologist changed the diagnosis to an essential tremor.

    Last summer, after going through a period of pretty rapid decline, I had DBS surgery. I, like you, am sharing my story on my blog.

    1. Sharing my story just come naturally for me for some reason, I was told for a few years I had a functional tremor that wouldn’t get worse but it did get worse and worse so I sort out another opinion this neuroogist did more investorgation and it was decided I had Parkinson’s. I take life one day at a time

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