Parkinson’s can be difficult to explain because so much of it is invisible.
People see me standing in line at the grocery store. They see me sitting at a restaurant. They see me walking through a parking lot.
What they don’t see is the battle taking place underneath the surface.
They don’t see the brain fog that makes it hard to concentrate.
They don’t see me searching for a word that I knew perfectly well just a few seconds ago.
They don’t feel the exhaustion that follows me around all day, even after a full night’s sleep.
They don’t feel the stiffness, the aching muscles, the burning feet, the internal buzzing, or the frustration of wanting my body to do something that it simply refuses to do.
Some days my feet won’t move.
Some days my balance disappears.
Some days my motivation disappears.
Some days my mind feels like it is moving through wet concrete.
Some days even my shirt hurts.
I spend so much energy trying to look normal that I have very little energy left for anything else.
Sometimes I cancel plans not because I don’t want to go, but because I simply don’t have enough gas left in the tank.
The hardest part isn’t always the symptoms themselves.
Sometimes it’s carrying a burden that nobody else can see.
There are days when my symptoms are obvious. There are other days when I look completely normal.
Those are often the days people understand the least.
Because looking okay and feeling okay are not always the same thing
sending lots of digital hugs your way my friend, Linda xx
Oh my friend your voice tells your pain, your struggle. I give you my support, my caring from afar but there around you, I trust, you feel. 💗
Did you ever hear of Dr
Mercola he wrote a paper on Parkinson’s disease. Maybe what he recommends will help you if you are interested.
No never heard of Dr Mercola
I have heard some positive reports about Dr. Mercola, perhaps worth a try to check ir out.
I’m sad to hear the difficulties you experience with Parkinsons. Life is challenging enough in general with troubles only God knows the pain people go through. “In this world we will have troubles and tribulation.” I put my hope in the Lord!
Blessings!
❤️carmen
Thank you for sharing this. It is a good reminder that we may never know what someone else is carrying.
“Because looking okay and feeling okay are not always the same thing” So very true!
Yeah most people don’t let on much how hard a struggle life can be
Oh Jo-Anne. That is a lot of have to cope with. Just shows what a strong individual you are.
Thank you for your kind words, I take life one day at a time
I’m sorry you have to deal with that, Joanne. So many diseases are invisible. We never know what someone is dealing with.
Thank you and yeah we generally have no idea what other people are dealing with
I noticed you mentioned standing in line at the grocery store, a moment that feels ordinary yet can be a subtle test of balance. When you’re in that position, try shifting your weight slightly forward onto the balls of your feet; it can help counter the tremor and give you a steadier base. Small adjustments like that often make a noticeable difference in how you feel while walking through a parking lot or sitting at a restaurant.
Thanks for that advice, I appreciate you sharing it with me